Fetal Alcohol Spectrum Disorder

Fetal Alcohol Spectrum Disorder (FASD) describes the range of effects that can occur in an individual exposed to alcohol before birth. These effects may include a wide variety of physical, intellectual, and neuro-behavioural deficits.

FASD Assessment Clinic

The CHEO FASD Assessment Clinic provides a multi-disciplinary diagnostic assessment for children, youth and adults with suspected FASD. The assessment team is comprised of a Social Worker, Psychologist, Psychometrist, Occupational Therapist, Speech Language Pathologist and Physicians.

Referrals

Eligibility Criteria for referrals:

The individual must have confirmed or suspected exposure to alcohol before birth
The individual must be 4 years of age or older - please note we will also accept referrals for adults
The individual must have significant developmental, behavioural, and/or mental health concerns
The individual must live within the Champlain LHIN (Ottawa, Renfrew County, Prescott and Russell, North Lanark/North Grenville and Stormont, Dundas & Glengarry)
If a child protection agency or adoption agency was involved with the individual, all available records must be provided with the referral

A completed psychological assessment is no longer required prior to referral. Our team will complete this assessment if one has not already been done.

Referrals must be made by the legal guardian or by a physician. All referrals are made through the CHEO Access Team:

Make a referral

What to expect

Your first visit

You will meet with a Social Worker. If the referral is for a child with suspected FASD, the parent/guardian can attend this visit without the child. The Social Worker will meet with you and gather all the information they can about the individual.

The Social Worker will want to see:

If the Children’s Aid Society (or equivalent) was / is involved. Please try to get copies of all available records ahead of the appointment and bring them with you.
If the individual is adopted, you will need to bring all available information about the biological family, pregnancy, birth, and the child’s medical and developmental history before the child came into your care.
All previous and current reports from psychologists (e.g. psychoeducational testing), psychiatrists, and therapists (eg: speech-language pathologist, occupational therapist) who have met with your child.
Most recent report card and individualized education plan, as applicable.

Additional visits

Following your first visit, you/your child will be scheduled for all other required assessments. This may include visits with a Psychologist, Psychometrist, Occupational Therapist, Speech Language Pathologist and/or Physician.

Reviewing your results

After the team completes their assessments they will meet and discuss the diagnostic outcome. You will then meet with the Social Worker and Psychologist to review the diagnosis. You will receive an individualized assessment report and recommendations. The Social Worker will help connect you to appropriate community resources including the FASD Worker program.

Frequently asked questions

How is FASD diagnosed?

We diagnose FASD by looking for these criteria:

Severe impairment in at least three different areas on testing done by a professional (e.g. a medical doctor, psychologist, occupational therapist, speech-language pathologist) and
Confirmed use of alcohol by the mother during pregnancy and/or
All three of the characteristic facial features

Can FASD be diagnosed with a blood test or brain scan?

No. There are no reliable tests to tell us if a child’s brain development has been affected by contact with alcohol before birth. The doctor may recommend other tests, like a blood test, if they think your child’s difficulties might be caused by a genetic condition.

How can use of alcohol during the pregnancy be confirmed?

This can be difficult, especially if the child is adopted. Here are some possible ways:

The biological mother can say she drank alcohol while pregnant, or her alcohol use while pregnant could have been recorded by a professional, like her doctor or a social worker.
Close relatives or friends of the biological mother, who are reliable, might say she drank alcohol while pregnant.
Other records of the mother having high levels of alcohol in her blood during pregnancy or records showing she was arrested for alcohol-related crimes.

It is best to have this information in writing, as hearing this information secondhand is not reliable evidence. Having reliable information is important so that the child doesn’t get misdiagnosed.

My child was adopted from another country and I have no records about the pregnancy, birth, or their biological family. Can they still be diagnosed with FASD?

Only if they meet criteria #1 and have all 3 characteristic facial features. If they do not have the facial features, it doesn’t mean they were not exposed to alcohol, but we cannot make this diagnosis without confirming that the mother drank alcohol while pregnant.

My child was checked for FASD in the past, and not diagnosed. Should they be checked again?

Generally speaking, no. But, if your child was very young at the time they were checked, it might be a good idea to reassess them.

My child’s doctor referred them for an FASD assessment, but the referral was not accepted. Why did this happen?

Possible reasons could be:

Your child is too young – diagnosing a child under 4 years old with FASD can be difficult. So we don’t accept referrals for babies or preschool aged children, except in specific situations.

It is important we have all key information to help us figure out if your child meets the criteria for FASD. This will help you get the most out of your appointment.

Where can I find resources and support?

Ottawa and surrounding area

ABLE2 Fetal Alcohol Resource Program
312 Parkdale Ave, Ottawa, ON K1Y 4X5
613-761-9522
fasd@able2.org

FASD Worker Program - CHEO
The bilingual Fetal Alcohol Resource Program aims to support the large numbers of people affected by this permanent physical disability. Through education and community leadership development the program draws together resources, skills and knowledge that exists in Ottawa and provides clinical support and community navigation for individuals with FASD and their families.

Renfrew

Family & Children’s Services of Renfrew County
FASD Services
613-735-6866 ext. 4128
Fetal Alcohol Spectrum Disorder Services - Family and Children's Services - County of Renfrew (fcsrenfrew.on.ca)
The FASD program is a home based program. Utilizing a strength-based, person-directed approach the FASD worker will meet with you in the comfort of your home and will assist you to access the services and supports tailored to your needs. FASD services are available to children and youth from birth to 18 years (or 21, if remaining in school), and residing in Renfrew County who are iving with FASD, or suspected of having FASD.

Lanark Leeds Grenville

KidsInclusive Centre for Child & Youth Development
FASD Workers
613-544-3400 ext. 3175
Fetal Alcohol Spectrum Disorder Workers | KidsInclusive
FASD Workers support families of children and youth with FASD by leading the development of a strengths based support plan for children/youth with FASD or suspected FASD. The FASD worker will work with the family, service providers and educators to build capacity for supporting the child/youth up to the age of 18 (or 21 if still in school) in family, school and community life.

The Rural FASD Support Network
The Rural FASD Support Network is a non-profit organization consisting of a large group of dedicated volunteers with personal knowledge of, and experience with Fetal Alcohol Spectrum Disorder (FASD), based in the rural areas of Eastern Ontario. They start with a focus on compassion and empathy.
The Rural FASD Support Network believes that with the proper support, individuals and families impacted by FASD can achieve success and reach their full potential.
The Rural FASD Support Network's purpose is to connect and provide caregivers and individuals impacted by FASD with appropriate local supports and resources.

Looking for more general information about FASD? Visit our FASD Worker Program page for book and website recommendations.